Hey, my name is Jordan Kilgo. I was diagnosed with endometriosis in the summer of 2025. Since 13 I have experienced severe painful periods and terrible GI issues. Being told it was IBS, acid reflux, or just part of being a woman. Although, I knew that it was something more.
I was told I was too young for endometriosis, but I knew endo was what I had. I went to see three different GI doctors. I had an endoscopy and colonoscopy, and was told there was nothing wrong. I felt so discouraged. I thought maybe it was anxiety, like I was told. Maybe it was just in my head. It was a bumpy road with lots of blood work telling me I was fine. Some days barely eating. My weight would drop during those tough times.
The first OBGYN did not give me answers. They told me birth control would help me. The second specialist gave me get answers.
The second specialist was an endometriosis specialist. An MRI was performed, and I was told it was negative. I felt so discouraged, but this doctor did not give up on me. She told me I could have endometriosis surgery.That it does not always show on an MRI. I decided to proceed with the surgery on. Which was preformed on June 10, 2025.
The endometriosis specialist was able to help me. Removing all the endo located behind my uterus and around my pelvic area. I knew one day if I kept trying I would find the doctor who would believe me; I sure did.
I now want to advocate for people on womb wellness. I created a support group called Stronger Together on GroupMe, where teens and adults don’t have to feel alone. They are able to go to community instead of feeling isolated.
I wanted to share my story because I notice a lot of older people share their story, but endo also affects young people too.
If you are a girl who feels like you might be too young for this inflammatory disease, you are not. And the sooner you get an answer, the better you will be in the long run.